A little day four update: All my stomach and chest muscles are really sore today, sore from deep full body coughs in periodic tidal...

Dear friends, Life has been full on as I’ve been navigating what I was hoping was the beginning of the end of MAC treatment.  So… I have...

Hey guys! Below is the link to my clinic update from month 9 of my MAC treatment dance. I’m also excited to share some news about a plan...

Hi Guys! Here’s a belated update from month 8 MAC Attack. (As an aside, “attack” isn’t normally my language of preference, but it just...

Well, all good things must come to an end, and so it is for our trip back to Upstate NY. The share is a little late.  It took me some...

I GOT TO CROSS THE FINISH LINE THIS YEAR! So happy and grateful and honored to be able to make an impact in this way. Sending out a thank...

No chicken butt shirt, but still a reason to celebrate

Finding balance in a way that honors my desire to have a big giant “yes” to this life, and still honors what’s possible for this body can...

As someone who wants to live full out and also has a seemingly compromised body that I want to do my best to take care of, I sometimes...

I woke up sick to my stomach, nothing super new while in this treatment, but this morning I also had an icy hot tingling sensation on the...

It took a little recognition and motivation, but definitely worth the twirl.

Clinic visit 3 while in MAC treatment at NJH. I was hoping for the news that we could start the year count down, but I guess we’re not...

Hey guys! Yesterday was visit 3 of this round of MAC treatment at NJH. It was a super long day, but we got some good news. Not quite the...

Hi guys! This one’s for my fellow humans who are living with Cystic Fibrosis. Those who live with CF know that airway clearance is a big...

A little breath, some blblblblblblblblbl@%#, some space, and of course fur baby snuggles get me through… Until tomorrow anyway ;)~

Sometimes have these time periods in my life where I really feel the preciousness of the moments that I get to live. I think the first...