MY BLOG

KORI TOLBERT

DAY 4 - TRIKAFTA POWER

A little day four update: All my stomach and chest muscles are really sore today, sore from deep full body coughs in periodic tidal...

WHAT'S BEEN HAPPENIN

Dear friends, Life has been full on as I’ve been navigating what I was hoping was the beginning of the end of MAC treatment.  So… I have...

MAC MONTH 8 (Sept 2019) UPDATE FROM KT

Hi Guys! Here’s a belated update from month 8 MAC Attack. (As an aside, “attack” isn’t normally my language of preference, but it just...

TEAM R4K CYCLE FOR LIFE 2019

I GOT TO CROSS THE FINISH LINE THIS YEAR! So happy and grateful and honored to be able to make an impact in this way. Sending out a thank...

BALANCE

Finding balance in a way that honors my desire to have a big giant “yes” to this life, and still honors what’s possible for this body can...

GRACE KNOWN

As someone who wants to live full out and also has a seemingly compromised body that I want to do my best to take care of, I sometimes...

MEETING FEAR, KNOWING LOVE

I woke up sick to my stomach, nothing super new while in this treatment, but this morning I also had an icy hot tingling sensation on the...

SHAZOOPDY DOO!

It took a little recognition and motivation, but definitely worth the twirl.

MAC TREATMENT ROUND 3, VISIT 3 NJH

Hey guys! Yesterday was visit 3 of this round of MAC treatment at NJH. It was a super long day, but we got some good news. Not quite the...

MY FELLOW HUMANS LIVING WITH CF

Hi guys! This one’s for my fellow humans who are living with Cystic Fibrosis. Those who live with CF know that airway clearance is a big...