MAC TREATMENT MONTH 9 AND… TRIKAFTA NEWS!!
Below is the link to my clinic update from month 9 of my MAC treatment dance. I’m also excited to share some news about a plan to get this bod to a place where it can try Trikafta! Woo friggin hoo! We’re on our way!
Also, I haven’t been writing as much on here lately. I’ve mostly been using the site for updates as I move through this MAC treatment right now. Getting through that and doing what we need to do to land here in Denver have been the priorities.
That said, I do miss my written shares from the heart. I feel their call…. and it’s my intention to share more of the written pieces that emerge as well soon.
With big, wide open Love,
(Music credits: Breathe by Matt Scales (also sung by Tess, Josh, and Rose, all of whom, including Matt have lived with CF) Thank you for this beautiful piece. <3 Here is the link to the youtube video of this song.)